Need a little Help

Ok, here's the deal.  Now that I have some of my health issues under control, I'm curious to see how much prior illnesses have contributed to them.  When I was about 4 months old, I had Haemophilus Influenzae type B (HIB).  Along with that I had meningitis, an ear infection and at one point a fever of 107.4.  In all the online research I have done on HIB, it just gives information about the vaccine.  That's not what I need to know!!!  The only information I have found on HIB was in a home medical reference book a few years ago.  It said most cases of Haemophilus have secondary meningitis.  There are cases that another infection was involved but I didn't look into them much, but there wasn't much information about any of it at all!!!

The only information other than that that I said above, is fact sheets to scare parents into getting their infant vaccinated for HIB.

I'm looking for this information to figure out if this is where some of my health problems stem from. 

I'll just write a little about the effects that I have a feeling that had been caused by the HIB, meningitis and 107.4 fever.

Central Auditory Processing Disorder
Central Auditory Processing Disorder (CAPD or APD) is tough to diagnose.  I wasn't diagnosed until I was 25.  It is a hearing/communicating/learning disorder.  Even at 29 years old, I have a hard time hearing people especially on the phone.  If you don't look directly at me when you are speaking, I totally misunderstand what you are saying.  With this disorder, something in the nerves of the ear and/or brain are not functioning properly.  It makes memorization very difficult, as reading comprehending or just comprehension as a whole.  Funny story (although my mom might not think so), the family was at my sister's this past Sunday afternoon.  My sister, mom, niece, my sister's mother-in-law and I were in the kitchen.  I was standing near her dining table and I heard mom say something.  To me it sounding like my mother had said "sniff my butt."  Anyone who knows Momma knows this wouldn't be something my mother would ever say!  I was told what she had said, but I forgot.


Any way, I don't know everyone who reads this blog personally.  That's why I posted it.  I'm desperate for answers and don't know where to even start looking.  HIB is practically gone, like measles and polio.  I just want to find out if this is some of the brain damage that they use on the fact sheets to scare the parents of infants or if there's more to it.

Thank you!!

Preview for May 13th's blog.......

I'm getting anxious to post my May 13th blog, so I'll give a little preview.  Maybe that will take the edge off some, for me that is!!

Enjoy!

Finally got my answers!

I got my results back last week.  They came back negative for Cushing's!  I'm happy about that, but at the same time, I wonder, if it's not that, what could it be?  I wasn't to thrilled that I had to call Dr. P.'s office to find out, when she had told me that they would call me.  I guess that's good news :)

I've seen it said between my "infertility friends" how hard church can be.  Well, I've been experiencing that here lately.  Hubby, at first, thought I just didn't want to go because I haven't been sleeping.  But when I explained to him how hard it was, he finally understood.  I love going to church, but at the same time, it can be the most damaging places to be.  Yes, you miss the preaching and the people that make your church family, but you feel like your heart is being ripped out at the same time. 

You see all the happy little families, and know something is missing.  Sometimes, I even feel discriminated against because I don't have any children.  The look of pity is horrifying.  Especially the looks when you run out of church crying.  I've done that on several occasions.  It's embarrassing (to say the least)!  I'm sorry to say, these feelings have been keeping me out of church!

Please, please, please, don't say in response to this blog:

• "You're still young"
• "Ya'll just got married, don't rush it"
• "Just relax"  
• "Just don't think about it"

Well, I think my mind is just about clear...lol  Good night everyone!!

Wait, Wait, Wait, Wait!!!

Just over 3 weeks ago, I did lab work to check for Cushing's Disease.  All I can comprehend from my limited research is that it's an over production of a hormone in the pituitary gland that makes the adrenal gland make more cortizol.  I'm on pins and needles!!!  I hate waiting!!! 

I went in to see the doctor (I'll call her Dr. P)  over a month ago for swelling in my legs and feet, my hands and my face.  My blood pressure was high too.  My normal is on the low side of normal.  I had all the normal blood test done.  I ain't telling all the bad stuff here (lol!!)  but some of it was high.  Anyway, I went back to see Dr. P after the two weeks, and she asked if I had ever been diagnosed with PCOS.  I thought that was odd, but...eh, what do I know?  I told her that I had been misdiagnosed with it over 10 years ago, but had blood work that said otherwise.  Then she asked about my saliva test because I'm on Compounded Progesterone for my endometriosis.  I didn't have the saliva test, my GYN (Dr. C.) started me on the lowest dosage, and we'll see from there.  Dr. P. told me that PCOS and Cushing's some of the symptoms can be mistaken for the other.

So, now after three weeks of waiting, I'm getting impatient!!!  That, and I haven't been taking my progesterone like I'm supposed to, but I'm getting it today!!

I just can't believe it!!!

Right now, I cannot even see straight, I am just that mad, hurt, and offended!!  PETA's new promotion was "Win a Vasectomy"  "in honor of"  National Infertility Awareness Week.  They have slightly revised their promotion to say "during."  Still!  What are they wanting, the publicity of shock value??  In one letter that a fellow blogger and volunteer with RESOLVE received, they said that infertile couples just need to adopt.  Yeah, like that's as easy as adopting a pet.  They also consider it justified that 7.3 million people in the US are dealing with infertility because the world is "overpopulated." 

That really makes me think.  When God made this world, it wasn't his will for people to die.  His first commandment to Adam and Eve was to be fruitful and multiply!  Now, if sin hadn't entered the world, how many people would be here today?  God made provision for this!  But I forget, God is the last one on the minds of the people with PETA.  They even want the Bible to be changed to consider the animals and make it more "animal friendly." 

PLEASE PLEASE PLEASE go to this link Tell PETA infertility is not a joke and sign the petition to get them to do away with this ad, or at least change it and leave National Infertility Awareness Week out of it.

Emotions and Skirts

Sad to day, but the past couple of days, I've been having THOSE days.  Today, we visited a church that we weren't sure about, but enjoyed it.  I think we enjoyed talking to the Pastor more than the actual service itself. 

Today, I want to add a song to this blog.  Warning~~  it is secular, but describes how I feel.

I have also finished Lew's skirts!!!  I made me one too.  They were very easy, well, until I got to the sewing machine :)  I'm not very good with the sewing machine, but I made it work!!

 

All I did was undo the seams in the legs of blue jeans, evened up where the would go to back together as skirts and then sewed them.  The top one, the legs were a bit slimmer, so I added panels to the sides.